Transition Digest #01-12

March 27th, 2012

1. Intro

Well, again, it’s been a long time since I have put together a Transition Digest. And activities related to health care transition continue to increase at an accelerating rate – too much to digest.

This issue includes information about upcoming meetings and conferences; an new training program; a few new (or improved) web resources; several article abstracts; and other announcements.

2. Conferences and Meetings of Interest

2A. Special Interest Group on Health Care Transition meeting in Boston during 2012 APS/SPR/APA meeting

The second meeting of the Health Care Transition SIG will be held during the 2012 APS/SPR/APA meeting on Saturday, April 28, 2012 from 8:30 AM – 11:30 AM in the Sheraton Boston Hotel’s Independence West Conference Room. (Interested individuals may attend this SIG meeting without registering for the APS/SPR/APA Meeting.

This meeting will include presentations on best practices in health care transition service delivery, innovative education curriculum design and delivery, creative patient and family engagement strategies and cutting edge research results. In addition youth and families from local advocacy organizations will be invited to attend and there will be opportunities for networking.

The HCT-SIG is co-chaired by a pediatrician (David Wood, MD) and a subspecialist (Maria Ferris, MD, MPH, PhD).
The SIG is open to any members of any of the APS/SPR/APA societies and other interested individuals.

Our vision is to create, through collaboration, research and advocacy, a system of health care that supports the optimal health of youth and young adults with special health care needs and developmental disabilities during transition to adulthood. Our mission is to create a forum to promote discussion, collaboration, research and innovation among scientists, clinicians, advocates, policy makers, as well as youth and families who are interested in improving the health and healthcare of adolescents and emerging adults as they transition from adolescence to adulthood and from child health systems to adult health systems.

For more information contact David Wood, david.wood(Replace this parenthesis with the @ sign)jax.ufl.edu or Maria Ferris, maria_ferris(Replace this parenthesis with the @ sign)med.unc.edu">maria_ferris(Replace this parenthesis with the @ sign)med.unc.edu

See: http://www.ambpeds.org/specialinterestgroups/sig_HealthCareTransition.cfm

And

Health Care Transition and Disease Self-Management

2B. 4th Annual HCTRC Research Symposium

The Health Care Transition Research Consortium (HCTRC) in collaboration with the Chronic Illness & Disease Conference, Transition from Pediatric to Adult Care, and Got Transition, the National Health Care Transition Center is pleased to announce a call for Abstracts for the 4th Annual HCTRC Research Symposium, which will be held on October 17, 2012 in Houston Texas at the Baylor College of Medicine

The goals of this international and interdisciplinary HCTRC research symposium are to invite researchers, clinicians, consumers and families to share their health care transition expertise and experience; foster the development of this emerging and growing field of science and specialty practice; and facilitate networking among colleagues and consumers. We are interested in receiving abstracts addressing the following topics:

  • Young Adult/Parent Experience
  • Quality Improvement/Program Design
  • Education
  • Research/Outcomes
  • Service Models
  • Other (i.e. abstract category not listed; thematic presentation involving several presenters)

Submission deadline: May 31st, 2012 at 12:00 midnight, PST Online Submission Link: https://uncodum.qualtrics.com/SE/?SID=SV_77A6vbYjaM6KMpS

Questions? Contact Ms. May Doan at 919-966-2561, extension 266 or e-mail May_doan(Replace this parenthesis with the @ sign)med.unc.edu">May_doan(Replace this parenthesis with the @ sign)med.unc.edu

HCTRC Co-Chairs: Cecily Betz, PhD, RN, FAAN and David Wood, MD, MPH
Abstract Submission Coordinators: Maria Ferris, MD, MPH, PhD and Megumi Okumura, MD

(Note: Information about the 13th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care will be posted to the Digest when it becomes available.)

2C. Third International Congress on Pediatric Chronic Diseases, Disability and Human Development, Jerusalem, December 02-05, 2012

Conference Announcement:
The Third International Congress on Pediatric and Adolescent Chronic Diseases, Disability and Human Development, which will be held in Jerusalem on December 2-5, 2012. The Congress, sponsored by the Gerry Schwartz and Heather Reisman Foundation, represents the joint collaboration of three leading institutions in the care of children with chronic diseases and disabilities: Hadassah Hebrew University Medical Centers, Cincinnati Children’s Hospital Medical Center (a leader in children’s health in the United States) and the Israel National Institute of Child Health and Human Development (NICHD).

Leading healthcare professionals from Hadassah, Cincinnati Children’s Hospital Medical Center and other guests from Israel and around the world will lecture and conduct symposia on a wide range of topics related to pediatric and adolescent chronic diseases and human development. Specific topics to be addressed include: the management of children and adolescents with chronic diseases, pain management, intellectual disability, autism, impact of chronic disease and disability on human development, shared decision-making, and strategies for ensuring the social and educational enfranchisement of children with chronic diseases or disabilities. Other topics to be discussed include adolescent gynecologic/endocrine disorders, violence, eating disorders, mental illness, and improved quality of care.

The lectures and workshops of the Congress are geared to professionals from all disciplines involved in the care of children and adolescents with chronic diseases and disabilities as well as those involved in the field of human development and public health. The organizers of the conference are inviting the submission of abstracts. Pertinent information about abstracts and other aspects of the conference including registration, lodging, travel arrangements, and additional programs associated with the Congress can be found at the Congress website: www.isas.co.il/chhd.

3. – Training

I am part of an interdisciplinary team that has developed a Certificate Program in Education and Healthcare Transition that is being offered by the University of Florida.

Education and Healthcare Transition Certificate

I am pleased announce that the University of Florida has recently approved an Online Graduate Certificate Program in Education and Health Care Transition (EdHCT), that was developed by an interdisciplinary team with members from the College of Medicine and the College of Education. Three years ago our interdisciplinary team offered an online graduate course that addressed transition of youth with disabilities and chronic health conditions from the perspective of both Education and Health Care. We offered the course for two years and the response from graduate students in Education and in Health Care (nurses, social work, teachers) was so positive that we developed a four course sequence that was just approved by UF as a graduate certificate program.

This program, which will start in the Summer Term (2012) is specifically designed to prepare professionals in-training and those in practice to learn how to work collaboratively to integrate education transition and health care transition for adolescents with special needs. The certificate Program is comprised of 4 online graduate-level courses that may be taken individually, but the certificate will be provided only if all are completed. Students earn graduate level course credits, and UF course fees apply.

This is a unique educational offering, nationally, and should serve to supplement the training currently offered to trainees and professionals from the health professions, education, public health, social work, law, etc. Therefore, I ask that you consider sharing information about our Certificate Program with residents, graduate students and other colleagues so they can enroll for the first course in the Program, which is being offered during UF’s Summer Term.

For more information see: http://education.ufl.edu/education-healthcare-transition/

Or send an e-mail to: edhct(Replace this parenthesis with the @ sign)coe.ufl.edu">edhct(Replace this parenthesis with the @ sign)coe.ufl.edu

4. New HCT resources on the Web

4A.. The State of Washington has developed four Transition Booklets and made them available on line (These booklets are, in part, on materials developed through my Health Care Transition Initiative at UF)

Going From Teen to Tween: http://here.doh.wa.gov/materials/tween-2-teen/13_CSHCN-12yr_E11L.pdf
Your Life, Your Health, Your Way:  http://here.doh.wa.gov/materials/life-health-way/13_CSHCN-15yr_E11L.pdf
Young Adults Transition Plan:  Your Future/Your Life:  http://here.doh.wa.gov/materials/transition-plan-young-adults/13_CSHCN-18yr_E11L.pdf
Planning for a Healthy Transition:  A Family Transition Plan:  http://here.doh.wa.gov/materials/healthy-transition-plan/13_CSHCN-parent_E11L.pdf

4B. Also look for new resources that have been added to:

4B1 FloridaHATS (Health and Transition Services)

See: http://www.floridahats.org

Highlights include:

Updated version of “Just The Facts: The 411 on Health Insurance for Young Adults Ages 18-30 in Florida”
See: http://www.floridahats.org/?page_id=627

Transition Readiness Assessment Questionnaire (Version 4.1)
http://www.floridahats.org/wp-content/uploads/2010/03/traq_4.1.pdf

Toolbox for Health Care Providers
See: http://www.floridahats.org/?page_id=608

4B2 Got Transition

See: http://www.gottransition.org

Highlights include:

Webinars and Radio Shows: See http://www.gottransition.org/about-us-news/broadcasts

Webinar: Understanding Guardianship and the Alternatives for Decision Making Support
Reaching the age of 18 can be an exciting time. It’s also a time when many questions arise around legal responsibilities for young adults with disabilities … LEARN MORE }

Got Transition Radio Episode 6: Transition and School: Health & the Individual Education Plan (IEP)
Got Transition Radio Episode 6: Transition and School Health & the IEP LEARN MORE }

Got Transition Radio Show Episode 5
Tune into this episode of Got Transition Radio when hosts Mallory Cyr and Eileen Forlenza will talk with special guest, pediatrician Kirsten Hawkins from George… LEARN MORE }

Got Transition Radio Show Episode 4
Before a Dr’s visit: From Panic to Prepared LEARN MORE }

Got Transition Radio Show Episode 3
Healthcare Transition & College- It Doesn’t Have to be Learned the Hard Way! Part II LEARN MORE }

Webinar: “A Common Strategy for Health Care Transition Improvement in Practice Settings: The Six Core Elements of Health Care Transition”
“A Common Strategy for Health Care Transition Improvement in Practice Settings: The Six Core Elements of Health Care Transition” LEARN MORE }

Got Transition Radio Show Episode 2
Got Transition Radio Episode 2: Healthcare Transition & College- It Doesn’t Have to be Learned the Hard Way! LEARN MORE }

Got Transition Radio Show Episode 1
Got Transition Radio Episode 1: Why this, why now- and what does it mean for me? LEARN MORE }

Webinar: Paving the Way to Adult Health Care
The New Clinical Report on Health Care Transition. Finally, planned proactive health care transitions are best practice for pediatric and adult health care set… LEARN MORE }

Webinar: Health Care Transition: Status of the States
This webinar presents findings from a January 2011 report, “Health Care Transition for Youth with Special Health Care Needs” published by Got Transiti… LEARN MORE }

Got Transition is MCHB’s National Health Care Transition Center and is supported by a cooperative agreement between the US Maternal and Child Bureau/HRSA and the Center for Medical Home Improvement (CMHI) at Crotched Mountain Foundation. Through partnerships among youth, families, health professionals, and policy makers, Got Transition focuses on the implementation and dissemination of health care transition best practices in primary care medical homes and specialty settings for youth and young adults.

4B3 Health Care Transitions

See: http://hctransitions.ichp.ufl.edu/resources_links.php

Highlights include:

A web-based “Health Care Transition Training Program for Professionals”, that offers up to 4 hours of free continuing education credits to Florida providers.
See: http://www.floridahats.org/wp-content/uploads/2010/03/floridahats_hct4hcp_brochure1.pdf and
See: http://www.aheceducation.com/ELearning/CourseCatalog.aspx

Talking with Your Doctor and Other Healthcare Professionals training website
(additional video clips for youth and young adults that illustrate how to communicate for effectively with health care professionals and carry out health care tasks, like scheduling a medical appointment, getting ready for a medical visit, taking medications at prescribed, and balancing medical treatments with other school, work and recreation)
http://hctransitions.ichp.ufl.edu/gladd/

5. New HCT-related publication

Publication relevant to Health Care Transition (published in 2011-2012 or new to me)

NOTE: Articles with a “go to article” link use the BioMedLib™ search engine to link you with the article abstract and related information, as it appears in the National Library of Medicine’s MEDLINE® database.

American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ: Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics; 2011 Jul;128(1):182-200 Go to the article

Arch Dis Child Educ Pract Ed

Benchimol, et al Assessment of Knowledge in Adolescents with Inflammatory Bowel Disease Using a Novel Transition Tool INFLAMMATORY BOWEL DISEASES MAY 2011

Breakey, VR; Blanchette, VS; Bolton-Maggs, PHB Breakey, V. R.; Blanchette, V. S.; Bolton-Maggs, P. H. B. Towards comprehensive care in transition for young people with haemophilia HAEMOPHILIA NOV 2010

Bregnballe V, Schiøtz PO, Lomborg K: Parenting adolescents with cystic fibrosis: the adolescents’ and young adults’ perspectives. Patient Prefer Adherence; 2011;5:563-70

Bryant R, Young A, Cesario S, Binder B: Transition of chronically ill youth to adult health care: experience of youth with hemoglobinopathy. J Pediatr Health Care; 2011 Sep-Oct;25(5):275-83 Go to the article

Bryant, R; Young, A; Cesario, S; Binder, B Bryant, Rosalind; Young, Anne; Cesario, Sandra; Binder, Brenda Transition of Chronically Ill Youth to Adult Health Care: Experience of Youth With Hemoglobinopathy JOURNAL OF PEDIATRIC HEALTH CARE SEP-OCT 2011

Christian, CW; Schwarz, DF Christian, Cindy W.; Schwarz, Donald F. Child Maltreatment and the Transition to Adult-Based Medical and Mental Health Care PEDIATRICS JAN 2011

DeRosa; et al Development and Validation of the Health Competence Beliefs Inventory in Young Adults With and Without a History of Childhood Cancer ANNALS OF BEHAVIORAL MEDICINE FEB 2011

Doug, M; Adi, Y; Williams, J; Paul, M; Kelly, D; Petchey, R; Carter, YH Doug, M.; Adi, Y.; Williams, J.; Paul, M.; Kelly, D.; Petchey, R.; Carter, Y. H. Transition to adult services for children and young people with palliative care needs: a systematic review ARCHIVES OF DISEASE IN CHILDHOOD JAN 2011

Dowshen, N; D’Angelo, L Dowshen, Nadia; D’Angelo, Lawrence Health Care Transition for Youth Living With HIV/AIDS PEDIATRICS OCT 2011

Duke, NN; Scal, PB Duke, Naomi N.; Scal, Peter B. Adult Care Transitioning for Adolescents with Special Health Care Needs: A Pivotal Role for Family Centered Care MATERNAL AND CHILD HEALTH JOURNAL JAN 2011

Duncan RE, Vandeleur M, Derks A, Sawyer S. Confidentiality With Adolescents in the Medical Setting: What Do Parents Think?J Adolesc Health. 2011 Oct;49(4):428-30.

Dupuis, F; Duhamel, F; Gendron, S Dupuis, France; Duhamel, Fabie; Gendron, Sylvie Transitioning Care of an Adolescent With Cystic Fibrosis: Development of Systemic Hypothesis Between Parents, Adolescents, and Health Care Professionals JOURNAL OF FAMILY NURSING 1074-8407 AUG 2011

Eyckmans, L; Hilderson, D; Westhovens, R; Wouters, C; Moons, P Eyckmans, Leen; Hilderson, Deborah; Westhovens, Rene; Wouters, Carine; Moons, Philip What does it mean to grow up with juvenile idiopathic arthritis? A qualitative study on the perspectives of patients CLINICAL RHEUMATOLOGY APR 2011

Fair, CD; Sullivan, K; Gatto, A Fair, Cynthia D.; Sullivan, Kristen; Gatto, Amy Indicators of transition success for youth living with HIV: perspectives of pediatric and adult infectious disease care providers AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV

Foster, BJ; Platt, RW; Dahhou, M; Zhang, X; Bell, LE; Hanley, JA Foster, Bethany J.; Platt, Robert W.; Dahhou, Mourad; Zhang, Xun; Bell, Lorraine E.; Hanley, James A. The impact of age at transfer from pediatric to adult-oriented care on renal allograft survival PEDIATRIC TRANSPLANTATION NOV 2011

Fredericks, EM; et al Transition of pediatric liver transplant recipients to adult care: Patient and parent perspectives PEDIATRIC TRANSPLANTATION JUN 2011

Goodhand, J; et al. Adolescents with IBD: The importance of structured transition care JOURNAL OF CROHNS & COLITIS DEC 2011

Goodman DM, Hall M, Levin A, Watson RS, Williams RG, Shah SS, Slonim AD. Adults with chronic health conditions originating in childhood: inpatient experience in children’s hospitals. Pediatrics 2011;128:5-13

Goodman, DM; etal Adults With Chronic Health Conditions Originating in Childhood: Inpatient Experience in Children’s Hospitals PEDIATRICS JUL 2011 128

Goossens E, Stephani I, Hilderson D, Gewillig M, Budts W, Van Deyk K, Moons P, SWITCH(2) Investigators: Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations. J Am Coll Cardiol; 2011 Jun 7;57(23):2368-74 Go to the article

Hamdani, Y; Jetha, A; Norman, C Hamdani, Y.; Jetha, A.; Norman, C. Systems thinking perspectives applied to healthcare transition for youth with disabilities: a paradigm shift for practice, policy and research CHILD CARE HEALTH AND DEVELOPMENT NOV 2011

Herzer, M; Goebel, J; Cortina, S Herzer, Michele; Goebel, Jens; Cortina, Sandra Transitioning cognitively impaired young patients with special health needs to adult-oriented care: collaboration between medical providers and pediatric psychologists CURRENT OPINION IN PEDIATRICS OCT 2010

Hess JS, Straub DM: Brief report: Preliminary findings from a pilot health care transition education intervention for adolescents and young adults with special health care needs. J Pediatr Psychol; 2011 Mar;36(2):172-8 Go to the article on PubMed

Hess, JS; Straub, DM Hess, Janet S.; Straub, Diane M. Brief Report: Preliminary Findings from a Pilot Health Care Transition Education Intervention for Adolescents and Young Adults with Special Health Care Needs JOURNAL OF PEDIATRIC PSYCHOLOGY MAR 2011

Huang, JS; et al Transition to Adult Care: Systematic Assessment of Adolescents with Chronic Illnesses and their Medical Teams JOURNAL OF PEDIATRICS DEC 2011

J Amer Acad Pediat; Amer Acad Family Phys; Amer Coll Phys; Transitions Clinical Report Author Clinical Report-Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home PEDIATRICS JUL 2011

Jackins B, et al. Managing a Special Needs Trust: A Guide for Trustees (DisABILITIESBOOKS, 2010). Managing a Special Needs Trust: A Guide for Trustees is a completely revised, updated, and expanded edition of Special Needs Trust Administration Manual: A Guide for Trustees (2004; 2005). Although earlier editions focused almost exclusively on Massachusetts laws and procedures, over 10,000 copies were sold across the USA. The new 2010 edition applies to all 50 states.

Jedeloo S, AnneLoes van Staa, Jos M. Latour, N. Job A. van Exel Preferences for health care and self-management among Dutch adolescents with chronic conditions: A Q-methodological investigation International Journal of Nursing Studies, Volume 47, Issue 5, May 2010, Pages 593-603.

Kelly, KB Kelly, K. Berg Sustainable transition process for young people with chronic conditions: a narrative summary on achieved cooperation between paediatric and adult medical teams CHILD CARE HEALTH AND DEVELOPMENT NOV 2011

Kingsnorth, S; Gall, C; Beayni, S; Rigby, P Kingsnorth, S.; Gall, C.; Beayni, S.; Rigby, P. Parents as transition experts? Qualitative findings from a pilot parent-led peer support group CHILD CARE HEALTH AND DEVELOPMENT NOV 2011

Kovacs, AH; Verstappen, A Kovacs, Adrienne H.; Verstappen, Amy The Whole Adult Congenital Heart Disease Patient PROGRESS IN CARDIOVASCULAR DISEASES JAN-FEB 2011

Lariviere-Bastien, D; Racine, E Lariviere-Bastien, Danae; Racine, Eric Ethics in Health Care Services for Young Persons With Neurodevelopmental Disabilities: A Focus on Cerebral Palsy JOURNAL OF CHILD NEUROLOGY OCT 2011

LaRosa, C; Glah, C; Baluarte, HJ; Meyers, KEC LaRosa, Christopher; Glah, Caryle; Baluarte, H. Jorge; Meyers, Kevin E. C. Solid-Organ Transplantation in Childhood: Transitioning to Adult Health Care PEDIATRICS APR 2011

Lugasi T, Achille M, Stevenson M: Patients’ perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolesc Health; 2011 May;48(5):429-40 Go to the article

Lugasi, T; Achille, M; Stevenson, M Lugasi, Tziona; Achille, Marie; Stevenson, Moire Patients’ Perspective on Factors That Facilitate Transition From Child-centered to Adult-centered Health Care: A Theory Integrated Metasummary of Quantitative and Qualitative Studies JOURNAL OF ADOLESCENT HEALTH MAY 2011

Machado, DM; Succi, RC; Turato, ER Machado, Daisy Maria; Succi, Regina C.; Turato, Egberto Ribeiro Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge JORNAL DE PEDIATRIA NOV-DEC 2010

Mütze U, Roth A, Weigel JF, Beblo S, Baerwald CG, Bührdel P, Kiess W: Transition of young adults with phenylketonuria from pediatric to adult care. J Inherit Metab Dis; 2011 Jun;34(3):701-9 Go to the article

Oskoui, M Oskoui, Maryam Growing Up With Cerebral Palsy: Contemporary Challenges of Healthcare Transition CANADIAN JOURNAL OF NEUROLOGICAL SCIENCES JAN 2012

Ott, MA; Rosenberger, JG; McBride, KR; Woodcox, SG Ott, Mary A.; Rosenberger, Joshua G.; McBride, Kimberly R.; Woodcox, Stephanie G. How Do Adolescents View Health? Implications for State Health Policy JOURNAL OF ADOLESCENT HEALTH APR 2011

Pai, ALH; Gray, E; Kurivial, K; Ross, J; Schoborg, D; Goebel, J Pai, Ahna L. H.; Gray, Emma; Kurivial, Kathryn; Ross, Julie; Schoborg, Debbie; Goebel, Jens The Allocation of Treatment Responsibility scale: A novel tool for assessing patient and caregiver management of pediatric medical treatment regimens PEDIATRIC TRANSPLANTATION DEC 2010

Pai, ALH; Ingerski, LM; Perazzo, L; Ramey, C; Bonner, M; Goebel, J Pai, Ahna L. H.; Ingerski, Lisa M.; Perazzo, Lauren; Ramey, Christina; Bonner, Margaret; Goebel, Jens Preparing for transition? The allocation of oral medication regimen tasks in adolescents with renal transplants PEDIATRIC TRANSPLANTATION FEB 2011

Pai, ALH; Ostendorf, HM Pai, Ahna L. H.; Ostendorf, H. Marie Treatment Adherence in Adolescents and Young Adults Affected by Chronic Illness During the Health Care Transition From Pediatric to Adult Health Care: A Literature Review CHILDRENS HEALTH CARE 2011

Park MJ, Adams SH, Irwin CE Jr: Health care services and the transition to young adulthood: challenges and opportunities. Acad Pediatr; 2011 Mar-Apr;11(2):115-22 Go to the article

Payne D, Kennedy A, Kretzer V, Turner E, Shannon P, Viner R. Developing and running an adolescent ward. Arch Dis Child Educ Pract Ed. 2011 Sep 21. [Epub ahead of print]

Perrin James, Sangeeth Gnanasekaran and Jennifer Delahaye. Psychological Aspects of Chronic Health Conditions. Pediatrics in Review 2012;33;99

Racine, E; Bell, E; Di Pietro, NC; Wade, L; Illes, J Racine, Eric; Bell, Emily; Di Pietro, Nina C.; Wade, Lucie; Illes, Judy Evidence-Based Neuroethics for Neurodevelopmental Disorders SEMINARS IN PEDIATRIC NEUROLOGY MAR 2011

Rouse, CM Rouse, Carolyn Moxley Informing choice or teaching submission to medical authority: a case study of adolescent transitioning for sickle cell patients ETHNICITY & HEALTH

Rutishauser C, Akré C, Surìs JC: Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents. Eur J Pediatr; 2011 Jul;170(7):865-71 Go to the article

Rutishauser, C; Akre, C; Suris, JC Rutishauser, Christoph; Akre, Christina; Suris, Joan-Carles Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents EUROPEAN JOURNAL OF PEDIATRICS 0340-6199 JUL 2011

Sable, C; et al Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues CIRCULATION APR 5 2011

Salama, FS; Kebriaei, A; Durham, T Salama, Fouad Saad; Kebriaei, Amy; Durham, Timothy Oral Care for Special Needs Patients: A Survey of Nebraska General Dentists PEDIATRIC DENTISTRY SEP-OCT 2011

Sawicki, GS; et al Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ-Transition Readiness Assessment Questionnaire JOURNAL OF PEDIATRIC PSYCHOLOGY MAR 2011

Schwartz, LA; Tuchman, LK; Hobbie, WL; Ginsberg, JP Schwartz, L. A.; Tuchman, L. K.; Hobbie, W. L.; Ginsberg, J. P. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions CHILD CARE HEALTH AND DEVELOPMENT NOV 2011

Shaw, TM; DeLaet, DE Shaw, Tressia M.; DeLaet, David E. Transition of Adolescents to Young Adulthood for Vulnerable Populations PEDIATRICS IN REVIEW DEC 2010

Snelgrove, Ryan Living with a Chronic Illness in Adolescence and Emerging Adulthood (Dissertation) University of Waterloo, Waterloo, Ontario, Canada.

Sobota, A; et al. Transition from pediatric to adult care for sickle cell disease: Results of a survey of pediatric providers AMERICAN JOURNAL OF HEMATOLOGY JUN 2011

Towns, SJ; Bell, SC Towns, Susan Joy; Bell, Scott Cameron Transition of adolescents with cystic fibrosis from paediatric to adult care CLINICAL RESPIRATORY JOURNAL APR 2011

Valenzuela, JM; et al HIV-A Qualitative Study JOURNAL OF PEDIATRIC PSYCHOLOGY MAR 2011

van Staa, A; et al Readiness to Transfer to Adult Care of Adolescents with Chronic Conditions: Exploration of Associated Factors JOURNAL OF ADOLESCENT HEALTH MAR 2011

van Staa, AL;. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers CHILD CARE HEALTH AND DEVELOPMENT NOV 2011

Watson, AR; Warady, BA Watson, Alan R.; Warady, Bradley A. Transition From Pediatric to Adult-Centered Care DIALYSIS & TRANSPLANTATION APR 2011

Wiedebusch, S; Ziegler, R Wiedebusch, S.; Ziegler, R. Transition – Expectations and Wishes of Youths with Type 1 Diabetes DIABETOLOGIE UND STOFFWECHSEL APR 2011

Wiener, LS; Kohrt, BA; Battles, HB; Pao, M Wiener, Lori S.; Kohrt, Brie-Anne; Battles, Haven B.; Pao, Maryland The HIV Experience: Youth Identified Barriers for Transitioning from Pediatric to Adult Care JOURNAL OF PEDIATRIC PSYCHOLOGY MAR 2011

Wodrich. Professional beliefs related to the practice of pediatric medicine and school psychology. JOURNAL OF SCHOOL PSYCHOLOGY Volume: 42 Issue: 4 Pages: 265-284 Published: JUL-AUG 2004

Wong, LLHL; et al. Transition Care for Adolescents and Families With Chronic Illnesses JOURNAL OF ADOLESCENT HEALTH DEC 2010

Wood, WA; Lee, SJ Wood, William A.; Lee, Stephanie J. Malignant hematologic diseases in adolescents and young adults BLOOD JUN 2 2011 117 22

6. Final Words

Please feel free to forward the Digest to others, and let them know that they can be added to the Digest distribution list by sending an e-mail to me.

If you get multiple copies of the digest, please send me an e-mail.

If do not want to receive the digest, please send me an e-mail.

<<<<<<<<<<<<<<<<<<>>>>>>>>>>>>>>>>>>

John Reiss
Transition Digest Editor
Institute for Child Health Policy
University of Florida
jgr(Replace this parenthesis with the @ sign)ichp.ufl.edu
http://hctransitions.ichp.ufl.edu

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